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So...I once again had a major episode that had me near blacking out and falling. It eventually landed me in the hospital where I could get a proper continuous EEG monitoring of my brain. I unfortunately didn't have very many during the procedure, only in the last couple of hours when I got some very bad news regarding my mother, who happened to be one floor below me.
Onto the diagnosis:
I don't have refractory seizures or any that come from the brain. Rather I have the other type, the psychogenic kind. Possibly. Personally I am unsure and will talk with my neurologist as soon as possible and before my vehicle gets repo-ed.
To say I was devastated was an understatement. Treatment for that type was/is pretty straight forward - surgery of some type. Major and dangerous, yes, but a lot more straightforward than psychogenic. Treatment could take years before I get results of any kind.
Unfortunately I couldn't properly articulate that to the doctor who gave me the news. Who also by the way, said I could have dystonia (1). And likened it to getting some sort of cramp that could be shaken off. [dystonia (2) - definition]
I was so upset.
Not livid but bawling my eyes out because she was misunderstanding me and crying because I couldn't properly explain myself, and just kind of cycling. Eventually I did calm down but I was basically through talking with her. She wasn't rude or condescending to me, she was really nice, if slightly dismissive, in fact and I know she was trying to make me feel better, but yeah, it just didn't happen that way.
On another note, where this happened, at a doctor's visit for Social Security, there is likely not going to be a denial of disability benefits. I mean, I even accidentally yanked him down as I was falling since one, he is a twig of a person, and two I was falling backwards, not forwards. Although I do fear a lawsuit from him for that. He seems the petty type. Not to mention just came off as a damn cold fish in general, and his nurse. Also.. I would have appreciated had he made the effort to wear better underwear or better pants... gags herself on a spoon on the remembered mental image
Anyway, I got to get the continuous EEG monitoring that I needed in hospital rather than at home and a diagnosis.
From here, I don't know what is going to happen or where to go from. Hopefully a talk with the doctor will get me on that path.
Onto the diagnosis:
I don't have refractory seizures or any that come from the brain. Rather I have the other type, the psychogenic kind. Possibly. Personally I am unsure and will talk with my neurologist as soon as possible and before my vehicle gets repo-ed.
To say I was devastated was an understatement. Treatment for that type was/is pretty straight forward - surgery of some type. Major and dangerous, yes, but a lot more straightforward than psychogenic. Treatment could take years before I get results of any kind.
Unfortunately I couldn't properly articulate that to the doctor who gave me the news. Who also by the way, said I could have dystonia (1). And likened it to getting some sort of cramp that could be shaken off. [dystonia (2) - definition]
I was so upset.
Not livid but bawling my eyes out because she was misunderstanding me and crying because I couldn't properly explain myself, and just kind of cycling. Eventually I did calm down but I was basically through talking with her. She wasn't rude or condescending to me, she was really nice, if slightly dismissive, in fact and I know she was trying to make me feel better, but yeah, it just didn't happen that way.
On another note, where this happened, at a doctor's visit for Social Security, there is likely not going to be a denial of disability benefits. I mean, I even accidentally yanked him down as I was falling since one, he is a twig of a person, and two I was falling backwards, not forwards. Although I do fear a lawsuit from him for that. He seems the petty type. Not to mention just came off as a damn cold fish in general, and his nurse. Also.. I would have appreciated had he made the effort to wear better underwear or better pants... gags herself on a spoon on the remembered mental image
Anyway, I got to get the continuous EEG monitoring that I needed in hospital rather than at home and a diagnosis.
From here, I don't know what is going to happen or where to go from. Hopefully a talk with the doctor will get me on that path.
